"LESSONS LEARNED FROM THE AT REUSE
DEMONSTRATION PROJECTS: OUTCOMES" Webinar
~ December 13, 2011 ~
LIZ PERSAUD: Hello, everyone. This is Liz with
the Pass It On Center.
According to my clock, it is 2 o'clock, 2:01
eastern time here in Atlanta. So we're going to actually
go ahead and get started.
We do know that your time is precious and valuable,
especially as we all have hectic schedules as we're
wrapping up the year, doing lots of reports, getting lots
of projects to a comfortable point in time as we take time
off for the holidays and welcome in the new year.
So we want to get started on time. And we'll be
here with y'all until about 3:30 p.m. eastern.
So thank you so much for joining us today. It's
great to see everyone on here. Thanks again for taking
time out of your busy schedule.
I did receive many e-mails today, yesterday and
last week from many folks all over the country saying about
how important this webinar was, but unfortunately they
weren't going to be able to join us. So they're looking
forward to catching up with us and also catching the
archive in a few weeks on the Pass It On Center website.
So again, welcome to everyone.
We're really excited about bringing you the webinar
today. This is the second part basically in a two-part
series that looks at the original reuse demonstration
projects grants that were originally funded by RSA and
really looking at the lessons learned.
Back in November we did lessons learned from the AT
reuse demonstration projects on sustainability. We had
great feedback, great attendance. And we're going to be
getting that up on the Pass It On Center website shortly.
So today's webinar focuses on outcomes from many of
those projects and just sharing that information with all
of y'all so you can utilize that; gain from their success
stories, from their helpful solutions as you enhance your
program and do your work when it comes to AT reuse.
So hopefully everyone can see the opening slide.
It has the title, "Lessons Learned From the AT Reuse
Demonstration Projects: Outcomes."
If you are having difficulty seeing the slide, over
on the left-hand side there are two green arrows that
circle each other, kind of like a recycling symbol. And
that's the refresh symbol. So you can certainly click on
that, and that will refresh your screen and hopefully bring
the picture in a better format for you.
There are a few photos that we have on this
beginning slide. Trish Redmon, a consultant with the Pass
It On Center, is absolutely invaluable, and she had pulled
together this PowerPoint as we were all giving her
information.
And she's got some wonderful pictures up here that
I wanted to just take a few moments and just quickly
explain to all of you. But they're examples of just the
great work that programs are doing all over the country.
On the left-hand side we have two individuals
actually petting a small calf, a baby cow. And these folks
are actually out from Wisconsin out in Easter Seals. And
they do a lot of work with farmers. Just a great variety
of different programs across the country. So that's what
they're doing over there on the left.
The photo in the middle is of some folks packing up
equipment into the back of a truck. And those are
computers. And these are the folks from Oklahoma with the
Computers For Kids program. And this is a donation drive,
and they've got a ton of equipment and just getting all
that equipment into the truck.
And then over on the right-hand side we've got two
gentlemen shaking hands with great smiles on their faces.
And this is from Mississippi. And the gentleman on the
left is someone who actually received some reused AT, and
there he is with his supervisor at work.
So we just wanted to share those photos with you so
you can get a glimpse of just what's happening all over the
country.
Down at the bottom of the opening slide, it says
download useful information from the knowledge base. So
we've got a lot of great content that Trish packaged
together that's in the knowledge base. And that's
passitoncenter.org/content. And she also posted that in
the public-chat area.
But we've got supporting documents, forms and data
collection instruments that will hopefully benefit all of
y'all as you're going through the webinar and definitely
afterward as well.
And so we'll go to the next slide.
We've also done a few housekeeping tips. Just
wanted to point that out to y'all as we're waiting for the
slide to come up.
If you are interested in communication with us at
any time throughout the webinar, you can do that through
microphone and through chat.
If you're utilizing a microphone, what you want to
do is just hold down the "Control" key. And when you're
finished speaking, you're going to release the "Control"
key. So hold down the "Control" key, be sure to ask a
question, any comments, just interacting with us. And then
when you're finished speaking, you definitely want to let
go of the "Control" key, and that allows us to finish
talking and allows other folks to contribute as well.
And over on the right-hand side under the
public-chat area, some of y'all have seen us saying hello,
getting some sound checks done, some different folks saying
hi to us.
So that's our public-chat area. Feel free to type
in there. Again, any questions, any comments that you
have, that's another great way to communicate with us.
We'll all definitely be looking over there throughout the
webinar, being sure to capture your questions and anything
that you have to say.
If you have the need for any adjusting of
accessibility options, you can do so over on the left-hand
side under on the "Options" menu.
There's an accessibility link that you can click
on, and it takes you through various options that you can
do to configure your screen to best suit your needs.
I do want to let you know that we archive all of
the Pass It On Center webinars. Kimberly Griffin, who is
from REACH, and she's our transcriptionist, she's on here
today.
Hello, Kimberly. And it's great to see you.
She's actually recording this webinar, and we will
have the audio and transcript as well as the PowerPoint up
on the Pass It On Center webinar in about three to
four weeks.
So this slide says that we offer credits. We
definitely do. We offer CEUs and CRCs. If you're
interested in getting CEUs from today's webinar, you can do
so by visiting the AAC Institute's website. They're the
ones that we collaborate with to bring you CEUs.
That website is aacinstitute.org. If you click on
their website, you can go to the section that says "CEUs."
You should hopefully see today's webinar posted. And then
you just follow the instruction to get your form and your
information for CEUs.
We also offer CRCs for today's webinar. We are
offering 1.5 CRCs. So some of you have already e-mailed me
behind the scenes that you need your CRC verification form.
If you need that, just please feel free to send me
an e-mail with your name, organization, city, state, and
e-mail address. And I'll definitely get that out to you
after the webinar.
And so we'll jump to the next slide, please.
Just want to let y'all know that we have an
evaluation. And if you guys could just take a few moments
to fill out the evaluation at the end of the webinar. We
promise this does not take a long time at all, but what it
does is just help us to offer these credits.
We do listen to all of your feedback. In fact,
we've got a meeting set up in just a few days where our
team is going to get together, take a look at all the
previous webinar evaluations, and look at the schedule for
next year and what y'all are saying that you need and what
you want to hear for the upcoming year as far as webinar
topics.
So definitely anything that you're interested in,
please include that on the webinar evaluation because we do
take that into consideration as we're planning for upcoming
webinars.
I also wanted to ask everyone a favor. In the
public-chat area, if you could just type in your name and
the organization that you're with. What that does is,
again, it helps us to create an attendee list, which helps
us to continue providing credits.
Some of you have already done that. We really
appreciate it. But especially for the ones that have
signed on with just an acronym, it helps us to give some
identifying information.
So if everyone can just type in your name and tell
us what organization that you're with, that definitely
helps us to continue offering credits. So we really
appreciate that.
We wanted just to give some brief information about
ATIA Orlando. We just wrapped up successfully ATIA in
Chicago. And we will be in Orlando in 2012.
Wanted to remind everyone to definitely go ahead
and register for ATIA. It's January 26th through 28th at
the Caribe Royale Resort in Orlando. And you can receive a
discount from the Pass It On Center. And you'll need to do
that by December 19th to utilize all those savings.
But here's some brief information about how it
works. You're basically going to go to the ATIA.org
website, click on "Register." You can also download a
registration form.
That's our code for the Pass It On Center. It's
PANZ3, P-A-N-Z-3. All the instructions are on there.
You're going to enter that on page 3. And then you'll
receive a $25 discount off of your registration. So we
definitely wanted to share that with all of you so you can
utilize that. And hopefully we'll see many of you out in
Orlando.
As we're getting prepared for ATIA, we are working
on our reuse strand. We have seven sessions that we were
very successful with in Chicago. So we're very happy to be
bringing you that again in Orlando.
So we quickly just put up the titles of these
presentations here. These are going to be delivered from
the Pass It On Center staff and many of our team
consultants from all over the country.
So Amy Goldman with the Pennsylvania program. Sara
Sack with the Kansas program. As well as Joy Kniskern;
Carolyn Phillips; myself, Liz; Trish Redmon; Lindsey Bean
Kampwerth out at Paraquad.
So we're really excited to be bringing you this
information here. So those are the titles of our
presentations for the AT reuse strand.
We're going to also have a booth. So take note
that we're in the exhibit hall, booth No. 1122. We'll be
there. So definitely stop by and visit us.
And we'll go to the next slide, Trish.
And again, just some more about the webinars.
Since we are going to be in ATIA, we will not have a
webinar in January, but we'll resume in February of 2012.
And as usual, we plan to have our webinars the last
Tuesday of each month for an hour and a half,
2 o'clock p.m. to 3:30 p.m. eastern. If there are any
changes, just watch out for the announcements, and we'll
get all that information out to you.
We'll also be creating our list of the schedule for
the next year, and we'll be sending that out with an
announcement to y'all very shortly as well.
So as we jump into the content of today's webinar,
we wanted to share with y'all some recommended reading.
This is a book by Mario Morino called "Leap of Reason:
Managing to Outcomes in an Era of Scarcity."
Folks are saying this is definitely a must-read for
nonprofit leaders. We have taken a few of the excerpts
from the executive summary just to share some of the points
in this book, and we used that throughout the presentation.
So we wanted to share this with you.
This book is published by Venture Philanthropy
Partners. And it's available free at leapofreason.org. So
we wanted again just to share this resource with you. We
recommend reading it. We'll be using it throughout the
webinar today. And it is available free to all of you.
And we'll go to the next slide, Trish.
So with that being said, I wanted to introduce our
speakers today. I'm sure many of you are familiar with
them, but we've got Joy Kniskern with the Pass It On
Center; Lindsey Bean-Kampwerth who is the manager of the AT
reuse program over at Paraquad, and she's also a consultant
and does great work with us here at the Pass It On Center;
and then also to Trish Redmon, a consultant with the Pass
It On Center, invaluable work and very instrumental in
pulling this webinar together today.
So thank you all for your time. Hope you enjoy the
content today. And I'm going to pass this over to Joy to
continue with her part. So thanks, everyone.
And here you go, Joy.
JOY KNISKERN: Thank you, Liz.
And also thanks to Lindsey and Trish and to all of
the 12 demonstration grantees who have helped to share
information in building this webinar. And thanks to all of
you for joining us today.
Today we're going to be talking about program
experiences with respect to the outcomes they've achieved.
And we want to look at the importance of gathering data on
outcomes from AT reuse programs.
With data we can make compelling data as to -- and
really it helps us to manage our programs more effectively
so that we can offer efficient programs.
We want to identify some of the methods of
measuring outcomes and what different programs have done in
approaching this issue. And we also want to look at using
outcomes to drive program decision-making.
We know that outcomes will really help us when
we're looking at whether or not we need to make one choice
or make another choice when it comes to everything from who
we're serving to what kind of devices we're really going to
refurbish and make available to our customers.
And then we also want to take a look at the
implications of outcome measurement to leveraged fundings.
And we'll be looking at how different programs have
approached this and the different funding sources that
they've pursued as they've looked at their outcomes.
And what we're going to be doing today is really
focusing on the outcomes and all of the objectives with
respect to the 12 demonstration projects that were funded
three years through Rehabilitation Services Administration.
And also, as I think many of you know, RSA also
funded one national technical assistance center. And we
feel very fortunate and honored to have had the opportunity
to work with the Pass It On Center over the past five
years, and we're moving into a sixth year of work with all
the demonstration grantees as well as with all states and
territories.
And really what we want to look at is some of the
outcomes and work with these 12 projects today. And I'm
just going to run through this list quickly:
Delaware, the Delaware Assistive Technology
Initiative; District of Columbia developed a wonderful
project called DC Shares; the Georgia STAR Network, pleased
to be a part of this whole process; Idaho developed the AT
Reuse Project; Kansas has been involved in expanding reuse
and assistive technology for Kansans; and then the
Mississippi Project START.
And then we're going to advance to the next slide.
And in addition to that, the Center For Independent
Living -- I think it's the oldest Center For Independent
Living in the country -- is Paraquad. And they are working
with an AT reuse model for independent living that serves
Missouri and Illinois.
In New Mexico, the New Mexico AT program received a
grant to work on their demonstration AT reuse model.
Oklahoma submitted a proposal for a grant called
AMBUCS' Share4Life Komputers, and that's the ASK program;
then in Texas, Project MEND is a 501(c)(3) nonprofit that
was involved in reuse, and they also received a grant.
Virginia Assistive Technology Network. It's the
VATS program. They received a grant to develop the
Virginia reuse network.
And then Wisconsin was an AgrAbility program, and
they received a grant to develop the agricultural AT
equipment reuse exchange called the AATER now.
And so those were our 12 programs.
Okay. Let's take a closer look at DC Shares. And
I hope you all can see the data here. They basically
looked at quantitative measures as a form of outcome,
quantitative outcome measurement.
And this capacity measurement shows a dramatic
increase in AT that was available for reuse during this
grant period.
And if you look across this grid here, you see,
from 2007 to 2010, they went into a no-cost extension.
They served a total of 2,838 individuals. And then if you
look at the total number of devices, that's much larger, on
the far right-hand column. It's 4,263 devices.
So what we know about that, from looking at that
program and many others, is that, oftentimes when people
come in to look at reuse, they're going to want one or more
devices.
And so you'll always see, I think in most programs,
that the number of devices exceeds the number of people who
are requesting them.
The value of these devices was a little under
$2 million. And that's looking at the manufacturer's sales
price minus 20 percent, or 20 percent less than the
manufacturer's retail sales price, and what that individual
would have had to pay if they had paid out of pocket.
Now, what we know, from looking at various
programs, not just the 12 demonstration grantees but
programs across the country, is that many of the people who
show up on the steps of reuse programs are those who are
underinsured or uninsured, meaning they really don't have
very good alternatives to look at devices that they might
need.
And so with this particular model, the whole idea
was to expand reuse of durable medical equipment -- they
were already doing some of that -- and computers in
collaboration with other local nonprofits.
One of the challenges they faced was transportation
in an urban area with all the traffic. And so for those of
you who are representing rural states, know that our highly
densely populated urban areas equally share in some of
those challenges; they're just a little bit different.
All right. We'll advance to the next slide now,
Trish.
Delaware is developing an AT reuse initiative that
is in collaboration with both Goodwill Industries and with
Medicaid.
Now, they had gotten a very late start. One of our
colleagues, Carolyn Phillips, our project director -- and I
see she's on the line here -- she was very involved in
Delaware in the very early phases when they first got their
grant to do a summit where all the stakeholders came
together: people representing disability organizations,
Medicaid, all of the potential AT reutilizers, the AT
program -- to look at what the needs were in that state.
We're following the development of this program.
We're very excited to see what they derive. We don't have
a lot more information right now to share with you, but
we'll be doing that later.
The Georgia STAR Network, basically the focus of
this grant in Georgia was to build upon the existing AT
reuse programs already in place. ReBoot with Touch the
Future, Inc. does refurbishing of computers. And then
Friends of Disabled Adults and Children, which is FODAC --
you see the acronym on the left-hand column -- they have
been in the business of doing refurbished durable medical
equipment since 1986.
And so with that, we also had a very strong network
of our assistive technology resource centers affiliated
with the AT program in the state. And they, in turn, had
different satellite groups that they were working with,
often disability organizations situated throughout the
state.
And so the whole point of this was to really
coalesce this entire puzzle of pieces -- pieces of this
puzzle on the table so that we could increase the building
infrastructure that could really sustain itself after the
grant funding was to disappear.
And so centralized refurbishing of durable medical
equipment and computers are done both at FODAC and Touch
the Future, Inc., ReBoot. And then the distribution
channels are with all of the statewide assistive technology
resource centers. There are other centers that have
donation sites.
And so we'll move to the next slide there.
Basically, in looking at outcomes, there's a lot
more that we measured than is just shown on this slide.
But in -- across the four years -- and that includes the
extension project years -- there were 13 really solid
partnerships established with groups across the state
serving as equipment depots and collection sites and
distribution sites.
There were 228 visits made to collaborate and
provide training so that, if refurbishing could take place
at the local level, then people would know how to handle
that.
The miles that were traveled over this four-year
period was over 27,000 miles. The devices collected were
over 5,000. And the computer and related devices collected
exceeded 2,000.
Now, the unique thing about this particular
model -- we're not familiar with any other state that is
doing this -- it has worked very well in our state where,
if somebody wants to participate as a part of the STAR
Network, they would pay a one-time fee of $1,000. And that
covers the cost of the training, the cost of making sure
people know how to use the database so we can track these
outcomes, and really so that people can do local area
refurbishing of simple items.
And then annually each of the partners pays another
$1,500. And so you're probably asking, Well, what does
that buy them?
There's a one-month -- every month there's a
transportation network from the central locations, and the
truck will go around to different sites. Everybody knows
ahead of time where these sites are. And there's
collections that take place as well as the potential of
distributing equipment that people need at the local level.
And so out-of-state fees, we've worked in the past
with South Carolina and have certainly opened doors to
looking at how we could collaborate with other states. And
those would be greater because of the transportation area
or the distance in miles to cover to get there.
And so we're going to move on to the next slide.
And with that, FODAC and the STAR Network really
started out of an individual's basement in 1986. And
basically it was supported through one local church.
Oftentimes -- and I think after the last webinar we
received input on one evaluation, How did these programs
start?
Well, in the case of FODAC, there was no money;
there was no support. The person was providing personal
storage out of their basement.
And the same could be true with ReBoot. I think
our AT program had about $5,000 to launch ReBoot back in
the late '90s. And Carolyn Phillips was very involved in
that.
And basically we built collaborations. And both of
the entities found that there was an increasing demand for
these kinds of devices; there was a champion who stepped up
to the plate and then was effective in bringing other
participants around them to really marshall really a strong
array of resources over time.
So now FODAC is a large nonprofit. It has served
the larger Atlanta Metro area, Georgia, neighboring states.
And it really has responded to international disasters,
such as Haiti, by providing additional funding through
local governments. And organizations have allowed for
their major expansion and renovation.
They got a lot of stimulus funds at FODAC. And
their new facility is 54,000 square feet and upgraded with
a clean room, which is a tiled room for sanitization and
refurbishing. So it's really been great to see that grow.
Another state that has really done a tremendous job
in growing their program through this tiny RSA
demonstration grant was Idaho. And they started with a
model in their proposal where refurbishing and reassignment
of devices was going to be done through centers for
independent living and resources sort of scattered about
the state.
And Pass It On came in and worked with the then
director at Idaho and looking, with all the stakeholders,
as to, Is this going to be a model that will work for them?
What eventually evolved is that these organizations
became networked more effectively around the state and
around reuse. And they've established a very billable
Medicaid service for AT reuse. They have a service that is
more centralized in the refurbishing that they're doing
with the refurbishing across the state. And they are now
providing a program to supply computers to students in
post-secondary schools.
All of this has really increased their referrals
and the volume of their equipment that's available for
reuse. And we're following that very, very closely. And
we'll have updates throughout the years -- throughout this
next year and hopefully the year afterwards.
Kansas has been such a model for all of us in the
country in how they've really pitched their program and are
working with Medicaid. This came about through a
legislator who saw that there was equipment that was being
abandoned along the side of the highway and saw that
frequently enough to make some phone calls, contacted Sara
Sack and said, "You know, it looks to me like there's waste
with equipment that's been provided. What can we do to
make a change?"
And so their collaboration with Medicaid is
twofold. They are stickering their devices that are
purchased through Medicaid funds that, when a person
doesn't need it anymore, they can funnel it to the reuse
program where it's refurbished and reassigned.
And they're also offering an inventory tracking
system for Medicaid so that, when somebody is assigned a
Medicaid supplier of durable medical equipment, the Kansas
program actually has this information, and they can check
to be sure that the person is receiving indeed what they
were supposed to receive.
And then, in turn, they use the funding that
they're getting to offer the inventory program to basically
provide refurbishing through vendors in the state. And
through this they've networked with existing loan closets
and reuse organizations across the state.
What's really interesting about their approach is
that they don't have a lot of storage capacity, and they're
working with partners across the state. And so, after 90
days that piece of equipment that's been turned in to them
for refurbishing with a vendor, that it's only stored for
no more than 90 days. And after that, it's distributed to
other networks such as the MS Society and so on.
One thing that's very important to realize is, if
any state is thinking about working with Medicaid, to
please contact us because it's one of those things that's
very important to be very careful in pursuing. It is not a
cash cow. And also, it is extremely important to realize
that we recommend a consumer-centric approach, meaning that
the person with the disability should be involved in making
that decision as to whether or not they might used reused
equipment or something that's new.
In many cases it's a stopgap until a permanent
piece of equipment can be obtained through the regular
Medicaid channels.
And so, if you look at the three years here, they
show -- and there are many types of data that Kansas does
collect.
But in terms of the savings and the value of the
equipment to the consumer, if they'd had to buy it new, was
almost $2.5 million, and that was for a total of 1,996
devices.
Okay. Let's move right ahead.
Although we have a lot of slides to cover, we do
want to make this very interactive. So at any time while
we're speaking, if those of you on the call, on the webinar
have a question, please either raise your hand or use the
chat, and we'll read your question, and we'll respond to
that.
More lessons learned from Kansas. One of the
questions we often receive is, "How do you receive good
equipment? What do you need to do to collect equipment
that is really good?"
And Kansas is really focused on doing a couple of
different strategies. One is to have multiple location
drives for a very short period of time. Like pick a
Saturday across the state, and do 13 drives working with
all the partners.
And they've had a lot of success with that. It
certainly takes a lot of planning but effective in getting
good, gently used items in.
They also found that, if they partnered with the
Red Cross when the Red Cross is doing blood drives, that
this was a great way to get equipment.
Essentially they would put up a booth and talk
about their Assistive Technology for Kansans AT program,
and they would inform them about what they're doing with AT
reuse. And people would call them afterwards with very
good equipment to donate.
Being specific about desired donations. And in
Kansas they look toward high-value, lightly used and
bariatric equipment. They are very specific about their
focus.
They have also done a lot of different topics that
are listed in the Pass It On website and how to plan major
events, how to create public awareness for reuse. You can
look at the Topeka donation drive by going to the
youtube.com/passitoncenter and get a little press release
there that was done in Topeka.
They also have a very sophisticated inventory
program that they are very willing to share with other
programs. So if you're interested in that, be sure to
contact either us or Sara Sack, and she will work with you.
All right. We'll move on.
Mississippi Re-Tech. There we go. We've got the
whole slide now.
Mississippi focused on education and awareness of
AT for underserved areas of the state. And with that they
served 1,130 customers who acquired DME and received
training. And there were 3,450 residents who received
training on AT through partnerships with private
organizations and hospitals across the state.
They did a huge public awareness campaign with
lovely PSAs that reached over 17,000 residents in the
state. And then they also developed AT distribution
centers with Methodist churches, health departments, the
Muscular Dystrophy Association/AbilityWorks sites.
And they really wanted to reach the large,
underserved rural populations in Mississippi and wanted to
work very closely with those community organizations.
What's nice about the model they've established is,
there was such a focus on this collaboration with other
organizations, that they've developed a nice synergy in the
state that is sustaining itself.
New Mexico. New Mexico we will be reporting on in
more detail later on. Their goal was to build a
sustainable AT reuse project through partnership with the
New Mexico TA project, the AT Act program, basically; and a
community nonprofit called Adelante that already provides
the repair and refurbishing of the services.
And they are primarily serving an urban area in
that state. This is for DME and computer reuse.
And then Paraquad. Touched on that a little bit
earlier. And Lindsey Bean will be joining us later in the
webinar to talk a little bit more about a specific approach
they developed to measure outcomes in terms of use of the
equipment, which is very helpful.
They developed AT sanitization videos, clinical
assessment video to share with their independent living
center partners. They developed repair training module and
video for public sharing. They also define outcomes for
measuring methodology and completed a retrospective study.
And that's what Lindsey is going to really talk with you
about.
They shared best practices through conferences,
webinars, knowledge base. And basically, as I mentioned
before, Paraquad is a major IL center in St. Louis, and it
serves Missouri and Illinois. And they are focused on the
outcomes research.
Okay. And then AMBUCS' Share4Life Komputers in
Oklahoma. This is a project that really started eight
years prior to receiving their grant in 2007. They were
able, through the grant, to move to a larger facility with
heat and water, but the building was sold, and the project
was unable to locate space.
And this is the program that we talked about last
week, if you were on the webinar, where a lot of the
knowledge and the charisma was with the director of that
program who was very, very capable and did a wonderful job
during the time before the grant and during the grant.
They distributed nearly 2,000 pieces of equipment,
still with largely a volunteer staff. But there were some
paid staff positions created. And for various reasons the
project closed in May of 2010.
Again, one of the lessons learned there was that
the -- sort of the leadership for the program needs to be
something that is distributed across everybody who is
working with the program.
So if the person who is in the lead for whatever
reason cannot continue or needs assistance, that there will
be other people and a very strong board to create that lift
for continuing the program.
And then Project MEND in Texas. Project MEND was a
reuse program in Texas when they got the grant. And their
proposal was to expand durable medical reuse services.
Theirs is a major collaboration with local area hospitals
and the county to receive good equipment from the
hospitals.
They have a very good service where they match the
equipment using trained professionals, certified
professionals.
They have been a major contributor to the Pass It
On Center and to best practices by sharing their
procedures, working on the quality indicators for AT reuse
on our website.
And they've really served as a model for nonprofit
sustainability: partnerships; diversified funding; and,
highlight, underscored, board development.
One of the things that Cathy Valdez has done, as a
tremendous leader of that organization, has developed a
very well-defined board roles and responsibilities where
everybody gets involved, everybody contributes. And it's
helped her program to make amazing strides.
If you look at the number of clients they served in
2007, 723. They've more than doubled the number of people
that they've served in a three-year period.
And the data speaks for itself. They've served
now, in the grant-year period, 3,676 people total. DME
items that they have distributed to these individuals,
9,106, with a value of those devices of over $2 million.
Virginia's reuse program, the FREE Foundation, is a
collaborative organization. It's a 501(c)(3) nonprofit.
And the AT Act program and all the network
affiliates, which included centers for independent living,
serve individuals with disabilities and persons with spinal
cord injuries or traumatic brain injuries as well as
veterans and voc rehab clients.
And they also have a wonderful partnership with
Goodwill where Goodwill donates all the collected AT to the
reuse network, and then it's refurbished and distributed
out.
Woodrow Wilson Rehab Center has been a key partner.
And where they come into play is helping with assessments,
to make sure the matching is done well, along with one of
the universities in the local area.
FREE was one of the first programs to collect
outcomes data to leverage funding for AT reuse. And we're
going to take a look at that in a minute.
Also, if you go to the Pass It On Center, you'll
see a video that we filmed online. It's at
youtube.com/passitoncenter.
Now let's look at their data. What's interesting
about this data is you see in the first three years they
really more than doubled the number of people that they
were serving. Everybody in the network across the state,
which included CILs and so on, were engaged. And the value
of the services more than doubled during that time also.
2010 looks like an anomaly. It's really a no-cost
extension for a partial year of data. Also, during that
time, on the positive side, they received a major grant,
the VATS program did, from the Brain and Spinal Injury
Trust Fund to continue to sustain the program.
But services needed to be focused on working with
those primarily with brain and spinal cord injuries. In
addition to that, one of the centers for independent living
backed out of services with the program. And so you see
that their data actually decreased during that fourth year.
What is happening now, after talking with Sonja and
with Barclay, is that those numbers are again increasing
because they've done such a good job in finding funding
resources and really filling some of the gaps that occurred
when the Center For Independent Living stopped being a part
of that network.
And Sonja's on with us today.
So, Sonja, anything that you'd like to comment on
there? We certainly welcome your comments.
All right. And we're going to jump on to the next
slide.
And then also in Wisconsin -- and I think many of
you are familiar with all of the national AgrAbility
projects. So it was really great to have that opportunity
to work with some of the AgrAbility programs.
And the one in Easter Seals out of Wisconsin, they
had found that they were basically supporting about 450
items per year. Farm workers were getting different kinds
of devices through Easter Seals each year in that state.
And what they didn't have was a want ad so that
they could really find an effective way of posting items
that were available and also gathering the needs data of
people out there.
And so this whole program was all about developing
a website for farmers with disabilities to exchange their
AT used in farming.
Through this project they analyzed about 335 cases.
And they surveyed these farmers to look at, Is this a
feasible thing to do?
And they developed a Craigslist-type website that
promotes this type of exchange of serviceable agricultural
assistive technology. And it also provides a venue for
high-value reuse items.
And if you look at the website at the base of the
slide, that's where you can get to that website. That
would be a good idea to replicate in states where you have
AgrAbility programs.
And we'd be interested in hearing about that. If
you find in your state that you do have something like
this, we'd love to see those AgrAbility programs fill out
information on the Pass It On Center where -- it's our
"find reused AT" program locator with a map of the United
States.
And we'll move on.
And in terms of measuring outcomes, "Only a
fortunate few nonprofits have a reliable way to know
whether they're doing meaningful, measurable good for those
they serve." And that's a quote from the "Leap of Reason."
And with that, I'm going to turn the program over
to Lindsey. And she's going to talk a little bit about why
measure outcomes and some of the information from the
Paraquad experience.
LINDSEY BEAN KAMPWERTH: Hi, everyone. I hope you
can hear me well. I tested this a couple times. So I hope
everything is good.
Hello from St. Louis. It's raining here, which is
better than snow, but...
So why measure outcomes? So you can capture a lot
of information from your raw data, which is more, you know,
your numbers of devices distributed or donated to you.
That's more of an output.
But really our goal should be to measure some
achievements or more of outcomes. So you know that maybe a
hundred people got a device from you, but you don't know
the impact that device has had on their lives.
And for most of the organization, that's why we're
here, is to help people and have an impact on their lives.
So the outcomes are really to see if we're
achieving the desired results of our programs; aid in
program evaluation, because program evaluation will always
impact our program, and then from that we'll evaluate it
again, and it's a continuing circle that you can just keep
doing, keep doing and get your program -- you know, it's
never ending; and then demonstrate the effective use of the
resources provided to us.
Thanks, Trish.
So measuring customer outcomes. So did the
customer actually get what they needed? So actually seeing
if you could fulfill the requests that were needed.
I know here at Paraquad sometimes, since our
inventory is based on donation, we can't always fill every
request. So keeping track of that.
Did they get the needed devices in a reasonable
time? So defining the timeliness and tracking the time
from the request to the actual match.
Were they satisfied with their services? So the
number of customers satisfied with the services. Each time
we have a reuse appointment, they're getting a satisfaction
survey to fill out.
And last one, did the equipment increase
independence, participation in work, school or community?
And if you guys have any other outcomes that you
measure, please go ahead and throw them out there in the
public-chat area. There's lots of things that can be
measured. So these are just a couple that were thrown out
here.
So quantitative measures are measures used as
numerical data under standardized conditions. So they're
your numbers. A lot of that data that Joy was looking at,
numbers and everything, percentages, is your quantitative
data.
So sometimes this is the volume tracking, your
donations, your devices assigned, value of donated devices,
those type of things.
Tracking of needs met. So your applications and
requests fulfilled.
And your calculation of avoided costs. So lost
work time avoided, maybe those health care expenses,
environmental impact.
Some of you guys are telling me my sound is going
in and out. And I haven't moved a thing. So I'm trying to
talk a little louder. Okay. Looks better. Okay. Great.
So the last point on that quantitative measures is
our use of business tools, so that return-on-investment
analysis. The cost benefit that we're getting from
redistributing a piece of reuse equipment, something
(inaudible) to measure.
If you want to go to the -- thanks, Trish.
So tracking the volumes. So you can track the
number of usable devices donated; the value of the donated
items, so that's part of your return on investment; the
number of devices reassigned; those individuals served,
because we know sometimes people are getting more than one
device; and the value of the reassigned AT.
And a really, really most helpful tool would be a
good inventory system.
So Kansas has a great one that they're willing to
share. They do a great job of tracking the client
information, the equipment information, and then the
contacts to match it up.
We use a database called Brightree, but this also
helps us with our repair center that we have. So ours has
a little bit more capabilities than just a regular reuse
program would need to do out repair program.
So go to the next slide.
So outcomes assessment. Your impact on the
beneficiaries of AT reuse. So some of the objectives
requires a qualitative measurement, like that satisfaction
can be on a Likert scale, you know, ranking on a 1 to 5
scale; or the individual impact of reused AT. So sometimes
that's more your qualitative data, hearing stories of why
it has helped them.
Some of the outcome data may be combined with the
numerical data and the qualitative data. So compare those
together, and that makes a really strong argument for what
you're doing and showing how your program is helping.
So the outcomes research. Here's some examples of
the collection instruments that can be found in our
knowledge base. The knowledge base is great.
So Paraquad specifically, we created our survey
with some academically designed instruments so that they
were already tested for validity, reliability and things
like that.
The CORE is more of a demographic part of the
survey.
PARTS/G is about participation general. So it asks
a lot of questions about what people are actually doing in
their everyday life. So it talks about moving around in
your home to moving around outside your home, leisure
activities, taking care of your household. It has quite a
few domains.
The SPARC, which is asking kind of like where
typically you go and how many times a week, a day, a month,
a year you go. We use pieces of that.
The FREE Foundation designed a monthly survey of
outcomes to assess the impact of AT. So there's some
different ways that you can do it.
And then the program survey of customer
satisfaction. There's the QUEST, the Quebec user
satisfaction -- I'm forgetting the T -- but that's a
great -- assistive technology. That's a great survey that
measures the satisfaction with the actual device and then
with the actual procedures that they got it. So it
discussed follow-up. And it's again the Likert scale.
And then finally the complex rehab survey in
Georgia that Joy was speaking on, confirmed barriers to
acquiring assistive technology, which I'm sure that we
know.
The QUEST survey I believe was the Quebec User
Satisfaction Assistive Technology.
Trish, I might have flip flopped a couple, if you
were going to type it in the public chat.
So surveys of customer satisfaction. Idaho surveys
users of the AT4ALL to evaluate and improve web exchange
sites. It's also the Pass It On Center knowledge base, the
user services, them measuring customer satisfaction.
We do an annual survey of participant satisfaction
with users of the repair and reuse services. So like I
said, we actually will always give them a survey every time
they come in here.
For reuse it's a lot of times we're seeing them
only the one time. For repair it's sometimes multiple
times. So we want to know about their satisfaction each
time they're using our service.
You can go to the next one, Trish.
So when I was a student at Washington University, I
worked with this program with Carla Walker and Kerri
Morgan. And so we wanted to see what was happening with
the assistive technology that was distributed.
The program had been going on about three years,
and there weren't any formal follow-ups or anything like
that that they were doing.
So we wanted to know if they were using the AT and
in what activities; if they were not using it, why they
weren't using it; if it was reducing falls; and then their
satisfaction with the device and the program.
So like I said, here's the surveys that we used,
and there it is. The Quebec User Evaluation of
Satisfaction With Assistive Technology; the CORE; and the
PARTS/G.
So the PARTS/G really went on to that "what
activities they were using it." The QUEST was the
satisfaction. And the CORE was just that general
demographic information to see who we were serving.
We created three different survey versions. One
was based on mobility devices. One was shower chairs and
transfer tub benches. And then the other was the toilet
seat, commode.
And we created them three separate like that
because really we didn't know how much the leaving your
home or moving around your home impacted by a commode. But
there was some other parts of the PARTS/G that actually
that was relatively in regard to toileting.
And then we mailed those surveys at the time to 338
different customers.
So if you go to the next slide.
We got more mailed back than we thought we were
going to, and we found out a lot of information. For the
most part, a lot of people were still using their
equipment, which was great. And for the most part, if they
weren't using it, they only needed it for temporary use at
some point not any major reasons of it breaking or
something like that.
So we converted that survey into tools to do the
ongoing outcome research that we do. So we wanted to
improve the device-fitting practices during the initial
evaluation. We identified some of those reasons for device
abandonment. We wanted to address the follow-up of
services needed and then address the impact of the device
on the person's participation in activities in their home
and community.
Again, this is what people want to know. The data
needs to show that the people are using it to kind of get
the funding aspect to it and more support in our
communities.
Customers are asked to participate, at the end of
the device-matching appointment, in the first kind of
pre-survey. We turn it into a pre/post. And then
follow-up is in 30 days after.
So it's basically the exact same survey, but we
want to see the change pre/post with getting them the
appropriate device that they need.
And then the participants can receive $10 when the
post-survey is completed. So that's, for the most part,
how everything is going.
We have kind of revamped the survey a couple more
times since then, just kind of shortening it is the biggest
issue. As most of you know, time is important to people.
But everything else should be on the knowledge
base. And if you guys ever have any questions, feel free
to e-mail me or throw some questions up in the public chat
right now.
I think I'm turning it back over to Trish, I think,
or Joy.
JOY KNISKERN: Thank you, Lindsey. That was very
helpful in looking at the tools and instruments and
strategies of what you've done with respect to measuring
those outcomes.
And again, we're looking at the approach as not
necessarily all the data that was gleaned from some of
these surveys. We have done that in the past. We can
certainly do that again.
One of the things that I wanted to slip back to is
there were a couple of comments here. I want to make sure
that we've addressed all of them.
And from WATAP, both Sam and Alan have asked "Can
we comment on whether these 12 programs have continued past
2010? I'm curious to know if the programs are continuing
to operate beyond the demonstration grant money."
And the answer to that is yes, with the exception
of the program in Oklahoma. And in the programs where
we've seen the most engagement in looking at collaborators
and how we can all work together and creative ways to
leverage funding together, those are the ones that seem to
have really built on this really -- maybe an existing
foundation and really jump started what they were doing in
a much bigger way.
And so, yes, with the exception of one program,
they are all continuing. And if there's anything else I
can provide with that, I'd be happy to do that.
So we're going to jump right into the next slide.
And it has to do with identifying avoided costs.
One way to look at outcomes is what did the availability of
an AT device avoid? And there are a number of ways you can
look at that.
One way is to look at the health care costs of what
would have happened if the person didn't get a device:
prevention of falls, reduction of visits to the emergency
room, prevention or reduction of the stay time in
skilled-nursing facilities.
And you will see, when we get into a little bit
more information about what the FREE Foundation has done,
that they actually used other information and references to
put numbers to these figures based on a survey of
participants in their program.
Lost income due to missed work. If somebody is
missing work because they don't have a device that they
need, how is that affecting them on the job?
And what other costs of the device did reuse result
in? One of the things that many programs are now gathering
is the landfill costs for disposal. And that's an
important thing as we look at increasing emphasis, in this
country and certainly in many other countries, on reducing
landfill costs and reducing what's in our landfills. And
also not only reducing what's in the landfill but
repurposing things that otherwise would just be wasted.
And we'll move on to the next slide.
We're going to take a closer look now at the FREE
Foundation. And they had noted that in Virginia about
20 percent of Virginians were uninsured persons who had no
access to health care or the AT that they needed; and that,
of the insured persons, many of them were unable to get
equipment or get it in a timely manner.
In some cases these are people who are insured, but
there's this gap of time between the time that the approval
comes through and what they need. So what's going to
happen to those people when they don't have what they need
on a short-term basis?
And then they looked at the consequences of that --
if you're unable to recover fully from the disability
because you didn't have the device. Was the person going
to have more falls? Did they think that they would have
repeated hospital stays or doctors' visits or emergency
room visits or stays in skilled-nursing facilities and
assisted-living facilities? And again, like we talked
about, what about the lost wages of patients as well as
caregivers?
And so they began to frame this in terms of --
could you pop back on that last slide. I didn't quite
finish there. If you could go back.
And then they looked at the measurable costs. In
other words, they actually gathered data from resources --
and this is on our website at the Pass It On Center -- the
cost of a typical office visit, the average daily cost of a
hospital stay, the average cost of an E.R. visit, the cost
of a typical stay in a skilled-nursing facility for
recovery, and then the financial impact of job loss.
So this is a very, very exciting survey that the
FREE Foundation did.
And we'll move on to the next slide where we're
going to talk about their methodologies and how they went
about collecting the data.
They looked at what were their objectives. They
wanted to show the equipment donators the therapeutic and
financial impact. In other words, how is this helping
people, and how is it saving them money?
And they wanted to show financial supporters the
impact of funding. So if somebody is going to give you
money from say a foundation, what impact is it going to
have on the people that are your target population?
And then they also wanted to test and monitor their
service delivery model. Are they really effective in what
they're doing? Is this working? Are they improving that
person's quality of life in terms of prevention of things
that were creating a lot of problems for people like falls?
So they surveyed about 120, 130 people, AT
recipients, and this was post-services, to determine if
they had become more independent, if they had had fewer
falls, if they reduced the number of medical visits and
services, and had they been able to remain at home.
And what they found was very exciting information.
They looked at -- and we can advance to the next slide.
For every 100 people served, 26 hospital stays were
avoided. And then they calculated in Virginia the average
stay at the time for hospital stay was $1,149, for a
savings of a little under $150,000.
There were 29 emergency room visits that were
avoided. 29 times the cost of that visit, which was
$1,896, for a total of a little under $55,000 in savings.
They saved 11 moves to skilled-nursing facilities
that were avoided. And they calculated, for an average of
50 days, which is what the literature showed them, and at a
cost of $10,150. This was done several years ago. I'm
sure that is higher now. And look at how much it saved
them: $111,650.
And then 11 moves to assisted-living facilities
were avoided. Again, 11 average stays of 50 days and a
savings of a little under $54,000. That's pretty
compelling information. If I were with a foundation that
supported those kinds of causes, I would certainly look
toward funding them.
So let's move ahead to some research that we did in
Georgia. And Lindsey touched on this. Laura Cohen, who's
known to many of us nationally, and one of our staff at the
time, Rhonda Perling, did a survey of about 49 individuals
who were being served at Friends of Disabled Adults and
Children. And this was in 2010.
And basically the research question was for us, if
safe, appropriate AT reuse could be the first choice when
readily available to Medicaid beneficiaries, could it free
funding desperately needed for complex rehab?
Our independent living counsel director had
approached us and said, "We've got a real problem here in
the state where complex rehab is being underfunded by
Medicaid."
And essentially they weren't paying for -- Medicaid
wasn't paying for a lot of the accessories that are so
important to make certain types of complex rehab, meaning
sophisticated electronic systems, work for individuals.
And the thought was, if we could use, refurbish,
and distribute gently used items that are lower cost, would
that free up funding for Medicaid to invest more in the
higher and more complex items. Very different model from
the one in Kansas.
And so basically we felt like we needed to start at
the very beginning and take a closer look at indeed why are
people coming to reuse programs in the first place.
And with this, basically the findings support what
we found with AT Act programs before, and that is that
systems are too complex to navigate. In some cases people
had insurance; they had Medicare; they had Medicaid, but
they'd just gotten fed up with the wait. And sometimes
they had to wait too long to get it. There was that
stopgap provision of reused equipment.
Many had inadequate insurance coverage. In other
words, they just couldn't afford the co-pays.
And then some individuals were just not aware of
what insurance was available to them. They couldn't say
whether they were on Medicaid or Medicare or what their
other benefits would be.
The lesson learned is we believe that there's a
need for funding navigators for AT specifically and that AT
reuse programs could certainly play a part in maybe working
with other people in the community who could support that
kind of intake questionnaire process with people applying
to the programs.
And then that way, if somebody can be redirected to
private insurance or Medicaid or Medicare, then you've got
a way to do that and saving your reused items for those who
truly would otherwise go without.
And we'll move right ahead.
And I'm going to turn it over to Trish now. She's
done an excellent job in working with Dr. Sack on looking
at the business analysis of return on investment.
Take it away, Trish.
TRISH REDMON: Thank you, Joy.
We want to credit Sara and the Kansas program for
being the first to really emphasize the need to apply
standard accepted business practices to AT reuse programs.
And those are very important.
And the book that we're recommending, "Leap of
Reason," emphasizes that, to get funding in the future,
that it's going to be very important to demonstrate what's
possible and that it's important to help nonprofits and
funders alike understand the value proposition.
And that's what this is about. Using
understandable business analysis for those foundations and
those corporations and those major philanthropists who
think in those terms to understand the return on investment
for AT reuse.
So as we've said, Kansas led the way in
recommending that programs adopt return-on-investment
analysis. And at its most basic, you calculate the value
of the equipment. If you're a business, you would say,
What's the value of the goods I produced, and what did it
cost me to produce them?
And so, in an AT reuse program, we would say,
What's the net value of the reused equipment? And that is
the value that we've assigned to the equipment minus the
program expenses, all of the program expenses it took to
acquire them, and then derive that return percentage by
dividing that by the cost of the program expenses.
So we wind up with a percentage or with a number of
dollars returned for each dollar invested. And this is the
standard return-on-investment analysis.
Now, Sara Sack has been very kind in applying that
and even in doing presentations on refining models and
showing how important it is to focus on high-value items.
And so here's an example of return on investment
for the program. And on her basic model, the value of the
equipment was $960,000 minus the $271,487 invested in
getting that, which gives us the $668,517. And then,
again, we're going to divide that by the program expenses.
And so, using that analysis, Kansas was returning
$2.46 for each dollar invested. And Sara said one of their
local legislators had said he would be very happy to see a
dollar returned for every dollar invested. So they were
doing quite well.
We've seen other programs look at some of the
things we talked about. We collect the value of the
reusable devices, but how do we get to a bigger measurement
of the real return on AT reuse?
Virginia dealt with the value of avoided health
care costs. Kansas and Georgia and several other programs
actually measure and report the environmental impact
savings; that is, what's the value of equipment kept out of
a landfill? How much money did we save the local
government providing that landfill?
And then Joy mentioned a few minutes ago that
Virginia dealt with the economic value of work. What is it
worth to avoid having someone lose their job; or miss work
for a number of days, weeks, or months; or in some cases
have a caregiver, have to forfeit their job to take care of
someone.
And so, in thinking about that, we said, if we
really sum all of those values together, we have a much
greater calculation of the approximate value of investment
in AT reuse.
And we call this approximate because this model
doesn't value completely in a quantitative way what it
means to someone to be able to return to school, to return
to work, to participate in their family fully, to
participate in the community. We haven't assigned values
to that.
But this is an approximate value, in the terms that
people can understand, of what is the total value of the
investment AT reuse.
So if we sum those things together, subtract our
program expenses, and divide by program expenses again,
what would the return look like?
And again, we're grateful to Sara Sack who was kind
enough to recompute those things. But let's touch on in a
minute -- one more minute on what those are: The value of
the reusable AT -- Joy mentioned that; the donated devices;
the value of the prevention for the health care costs.
And we can collect survey data to compile these
values. And I've noted for you that the survey used by
Virginia and the FREE Foundation is in our knowledge base.
And what I did to make it simpler is to collect all
of these things into one document for you. So if you take
a look at the knowledge base today, you'll see a
compilation with all of the surveys mentioned lumped into
about an 11-page document for you.
And then we look at environmental impact. What's
the weight? Some people use some standard tables for
simplicity and ease of calculation of what's the average
weight of a computer or a wheelchair or a walker or
whatever that's diverted from a landfill. And then you can
find what the cost of landfill disposal is in your area.
And then the economic value for -- and the FREE
Foundation used federal poverty guidelines. You could
determine an average day's lost work avoided. You might
use minimum wage in your state. These are very
conservative measures. So we're not overstating the
impact.
And then Sara recalculated the return on investment
from Kansas with a couple more values because she used an
ultraconservative measure, since she had not surveyed
Kansas, and said, "Okay. Instead of the percentage that
Virginia found, suppose only 1 percent of those customers
served avoided going into assisted living?" One thing. So
she took an ultraconservative measure and said, okay, that
would be an added impact.
And she had the data on the landfill savings and
the amount kept out of landfill, the 37-plus tons, and the
cost of landfill disposal, $38.80 per ton. And even
without adding in lost wages, what happens to the return on
investment? It changes her $2.46 to $3.11 for every dollar
invested, or it kicks it up 26.4 percent.
So if we think about what does this mean in
persuading funders that investment in AT reuse is a really
sound investment for a great return, then that's attractive
to almost anyone in those terms.
So this is what we learned about leveraging
outcomes.
And another point from "Leap of Reason," they said,
We will be required to do this, not just have more
performance data; we'll have to have more decision-making
rigor, and there's going to be a spillover effect for
private funders.
Which is to say that all the government agencies,
all of the corporate foundations, all of the nonprofits
that give us money, all of the granting agencies are going
to take a stronger look at what's happening with their
money.
And so FREE Foundation in Virginia reuse network
used those calculations of avoided health care costs to
lobby for funding for their reuse program with their
legislature. They literally collected the data, and they
created little one-page flyers.
And if you go back to our March webinar on Making
the Business Case for AT Reuse, you'll see some of those
things.
But the point is that you can use these models to
build your own instruments to collect data from your
customer. And you can use the calculations that are
appropriate to your area to develop a financial impact
analysis to show prospective funders.
So if you take a look in the knowledge base for the
questionnaire and go back to our webinar archives, you can
find those resources.
One methodology based on FREE is you can collect
all the data in an original way, and that's the greatest
degree of specificity and accuracy and will probably have
the greatest impact.
If you really go through the list that's in the
ancillary package, you collect the data to match the
calculations that FREE Foundation did, you are using the
data in your state or your area, then you'll have a very
specific calculation to show a prospective funder.
And if you look at the survey instrument, you'll
know what to collect.
Or before you do that, if you'd like to look at
your data now and see what kind of impact would it have on
my return-on-investment calculation, then you can use
Virginia's results, as Dr. Sack did in her second
calculation, make a conservative assumption to estimate the
impact in your service area, and that will give you a rough
look at how much is this going to change the
return-on-investment calculation.
So I'm going to turn this back to Joy to talk about
the broader impact of what's happening with measuring
outcomes in AT reuse.
JOY KNISKERN: Thank you, Trish.
And I think that we want to take a look at how you
can develop models for outcome-driven collaboration with a
focus on long-term outcomes that would bring with it
inexorable pull toward multiorganization collaborations
capable of delivering a comprehensive set of services.
Now, what we've said previously in many different
webinars is that, the extent to which you're really working
with a broad range of people -- disability advocate
organizations, AT reuse organization, VR programs,
third-party entities -- working together to create this
wonderful energy around AT reuse to find ways to stretch
your dollars and to really provide a consistent and safe
and appropriate consumer-focused approach to really reusing
equipment.
So with that, we're going to move on to the next
slide.
And the changed landscape. Since these grants were
given in 2006, I think the need for affordable AT has
really increased. If you look just at one piece of data,
the rising employment that resulted in a loss of insurance
coverage and therefore access to AT for millions of
Americans, you can see that the number of people who are
unemployed moved from a little under 4 percent to a little
under 10 percent of Americans.
And of course we do know in different states that's
not always the case. Everybody should move to North
Dakota. And Scott Weissman is on the phone. I'm sure
they'd welcome us there because their unemployment rate is
practically nil, I believe. But in any event, that's just
one of the pieces of the changing landscape.
We have also certainly experienced decreasing
dollars. Medicaid programs in these states are so
stretched, and the needs continue to increase.
And so all of that has placed more pressure on the
AT reuse programs to provide an appropriate, safe
consumer-centric approach to providing equipment, either on
a short-term basis or on a more permanent basis, if indeed
it's somebody who's not insured.
And we'll move on to the next slide.
The bottom line is that we've seen that the success
of these programs is heavily dependent on the partnerships,
the collaboration, and the relations formed to optimize the
use of resources.
And it goes without saying that we're also talking
about diversifying funding to support the program. You
should have a mix of public and private funding, and to
continually have people who keep on the radar scope, how
they can use this data to approach new funding sources.
If we collect specific outcome data, we can use
this business analysis to show how effective an investment
in AT reuse can be to leverage funds to sustain these
programs that serve those in need.
And again, we underscore the fact that AT reuse is
only one part of the picture. It in no way diminishes or
takes away the need for first-line new equipment that
people need in specific cases. It's just a part of the
whole service delivery continuum.
And so with that, in looking at the outcomes, you
heard Trish talk about this wonderful instrument that she
really kind of came up with looking at all the great work
that Sara Sack has done and the FREE Foundation and looking
at how can we put it all together?
And what we want to toss out to you today -- and
we'll be getting information out to all the states and
territories -- we'd like to do a mini competition awarding
some grant funds. And we'll be working with our team to
come up with what this will look like. It wouldn't be
until probably sometime in January or February -- where
programs out there that have existing reuse programs in
place would look at the CAVIAR as an approach to collecting
data on people that you have served.
And what we want to do is define some parameters
around that. Like maybe it would be people served within
the last three months of your program. And then look at
that from all the programs and put that into a bigger
picture that gives a more in depth use at AT reuse.
And so we'd like to welcome you to think about
that. We'd love for you to share in this. We'd love to be
able to share your data and then the collective data.
So if you are interested, please e-mail me, and we
will put your name on the list, and we will certainly be in
touch with you later -- or earlier next year.
And with that, I'd like to suggest that you please
evaluate us. And we have a few minutes open for questions
and answers -- actually, only three.
But we do certainly like for you to evaluate us and
let us know what you think.
We're very interested in hearing from you about
whether or not this was helpful in expanding your
understanding as to how outcomes can help your program and
specific strategies and tools that are already there that
in some cases have been vetted like through different
programs. Like Paraquad, they're using instruments that
have already been tested for reliability.
We'd really like for you to evaluate us. And in
that evaluation, you can share information about the kinds
of things that you really want to learn more about.
Last time in the evaluations we received, one
responder suggested that we need more information about how
to obtain gently used good equipment.
And so we'll be putting our heads together and
culling information from all the programs and rolling that
out in the new year.
So with that, let me just get off the mic and see
if there are any questions or comments. There was a
comment up there. I don't want to miss it.
Sonja has said -- let's see. "Thank you Sonja
Schaible and the FREE Foundation for pointing us in this
important direction."
And Trish also commented that "We promised a bar
chart, and this is it. Evaluate us at SurveyMonkey.com."
And so with that, I'll just get off the mic. And
hopefully this has helped you today.
Okay. This will be our last webinar of the year,
wrapping up 2011. And we really wish you all a very merry
holidays and hope that you will jump on our webinars
starting next year.
Sonja has said "You're welcome. Always glad to
help," in response to Trish's question.
So enjoy your holidays coming up. And we look
forward to seeing you in the new year. Take care.